About Us

Empowering Lives. Inspiring Change. Building Stronger Communities.

The DaMyri Stepter Foundation is committed to making a meaningful difference in the lives of individuals, families, and communities. Through education, outreach, advocacy, and community-centered initiatives, we work to create opportunities, inspire hope, and empower people to reach their full potential.

Our foundation believes that positive change begins when people have access to the resources, support, and opportunities they need to thrive. We are dedicated to bringing people together, raising awareness around important causes, and creating programs and events that make a lasting impact.

Join us in our mission to find a cure by getting involved, donating, or learning more about RP and its impact on individuals and families.

DaMyri Stepter Foundation, Inc. is dedicated to raising awareness and funds to support research to find a cure for Retinitis Pigmentosa, a genetic disorder that causes vision loss and blindness. With your help, we can help those affected by RP and their families find hope for a brighter future.

Our Cause

Retinitis Pigmentosa is a genetic disorder that causes a progressive loss of vision. It affects millions of people worldwide and can lead to complete blindness. The DaMyri Stepter Foundation, Inc. was established to help find a cure for this condition and improve the lives of those affected by it. Our goal is to increase awareness of Retinitis Pigmentosa and raise funds to support research and development of treatments.

  • 1 in 4,000 People are affected by Retinitis Pigmentosa (RP)

  • No Cure Yet: But many charitable organizations are actively working to find one

  • Age 40: Often diagnosed in childhood or adolescence, RP is an inherited retinal disease causing progressive loss of night and peripheral vision. Many people with RP are legally blind by age 40, with a central visual field of less than 20 degrees in diameter.

What We Do

We support our community through initiatives designed to:

  • Provide meaningful educational and community opportunities

  • Support individuals and families in need

  • Raise awareness and support for important causes

  • Encourage community involvement and volunteerism

  • Create opportunities for personal growth and empowerment

  • Partner with organizations and individuals to expand our impact

What We Do

We support our community through initiatives designed to:

  • Provide meaningful educational and community opportunities

  • Support individuals and families in need

  • Raise awareness and support for important causes

  • Encourage community involvement and volunteerism

  • Create opportunities for personal growth and empowerment

  • Partner with organizations and individuals to expand our impact

Our Vision

We envision communities where every individual has the opportunity to thrive, every voice has the opportunity to be heard, and people come together to create a brighter future.

Our Story

On June 25, 2015, my son DaMyri was diagnosed with Retinitis Pigmentosa, a rare disease that has gradually taken his sight.

Our Story

On June 25, 2015, my son DaMyri was diagnosed with Retinitis Pigmentosa, a rare disease that has gradually taken his sight.

Now 19, though unable to distinguish faces, he continues to see the world through determination and faith. A sophomore at Nicholls State University, DaMyri made the President's List both semesters of his freshman year - a testament that ability is not defined by vision, but by opportunity

The DaMyri Stepter Foundation, established in 2021, exists to extend that opportunity to others living with blindness or visual impairments. Our Mission is simple: to bring light, hope, and opportunity to those navigating vision loss.

The ultimate goal of the DaMyri Stepter Foundation is to establish a local center for the blind, reducing the need for families to travel for essential services.

Donate Today!

Retinitis Pigmentosa is a genetic disorder that leads to vision loss. It affects millions of people worldwide. DaMyri Stepter Foundation, Inc. is a charitable foundation established to increase knowledge of and raise funds to find a cure for Retinitis Pigmentosa. Your donation can make a huge difference in the lives of those affected by the disease.

© 2026 by the DaMyri Stepter Foundation.

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